Hello all! So very sorry I haven’t kept you all up do date with Emma through this blog as much as I would have liked. Facebook is quicker and an easier way to make updates so if I’m not posting on here, I’m most likely on Facebook.
Emma as been doing extremely well considering her condition. We’ve battled two viral infections. One was the metonumovirus, which she was airlifted to children’s mercy for the first week of April. She was having extremely low oxygen levels and children’s mercy did not feel comfortable with us being at Salina regional. She spent two nights in the hospital and then we were sent back home. Two weeks later, she was hospitalized again, this time in the ICU, for low oxygen levels and bloody stool. She was hospitalized for a week and they decided that Emma was struggling with a milk protein allergy. They put her on an expensive formula (and by expensive, I mean $42 for a 14 oz. can of formula! Yikes!) and wait until two weeks after I was on a dairy free diet before starting up breast milk again. She’s been back on breast milk now and seems to be doing better. Thank goodness, because she went through four cans in two weeks which was crazy!
She’s still gaining weight but at a slower pace which is normal for a baby with a heart difference. Our goal weight is 13 lbs by her Glenn surgery which is in August. She has a heart cath on the 12th of June and we are praying all goes well with that. The cath will determine if she needs her next open heart surgery before August. Due to her lower oxygen levels, they think she is outgrowing her BT shunt quicker than expected since she was so small (only 5 lbs) at her first surgery.
We have been so blessed to feel like we have a “normal” healthy baby on most days. She’s developing right on schedule and is the sweetest thing you’ll ever meet. She’s such a happy little girl.
Emma rolled over from tummy to back for the first “official” time today! Daddy was home to see it too. We also believe she is working on ozone teeth. She’s constantly chewing and sucking on anything she can get her hands on and likes her gums massaged 🙂
Prayer Requests for our family:
Nick is currently working two jobs, so he is gone almost every day from 6:20am-11 pm. He’s working over a 70 hour week so the kiddos do t get much daddy time. Pray that we adjust, even though it’s been 4 weeks we are still trying to get used to it.
The finances of our family could always use prayer 🙂 we are making ends meet but are still trying to adjust since I am no longer able to bring in any income. I am currently looking into making some hand made things such as scarves, baby hair bows and some other things to bring in some income to help with some of Emma’s medical expenses. What do you all think? I was thinking of using it as a fundraiser for Emma’s next surgery since Nick will be needing to take a few weeks off of work during that time. Let me know what you all think.
and last, but certainly not least. Pray for Emma’s health. Pray that she can stay well for the next eleven days leading up to her heart cath so we won’t need to reschedule. And of course we want her to be healthy all the time, but especially this next week and a half.
i want to say thank you again to everyone who has supported us, prayed for us and helped us out by randomly bringing meals and even just saying they’re praying for us. Words can’t express how thankful we are for YOU. God has been gracious to Emma and has a plan for her 🙂